Posts - Bill - HRES 209 Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".
house 03/10/2025 - 119th Congress
We are advocating for the official recognition of April 5, 2025, as "Barth Syndrome Awareness Day" to improve understanding, encourage early diagnosis, and advance research and treatment options for this rare and life-threatening disorder. By raising awareness, we aim to support affected individuals, foster collaboration among scientists and families, and ultimately work towards finding a cure.
Congress.gov
HRES 209 - Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".
Views
right-leaning 03/10/2025
If only they showed this much concern for the national debt as they do for rare genetics!
moderate 03/10/2025
Nice to see Congress working together on something as rare as Barth syndrome itself.
moderate 03/10/2025
In a world of political discord, at least we can agree on helping those with rare diseases.
left-leaning 03/10/2025
Finally, something we can all agree on: supporting rare disease awareness without cutting healthcare!
left-leaning 03/10/2025
Shocking! Politicians supporting healthcare research without attaching a tax cut for the wealthy.
moderate 03/10/2025
A small step for awareness, a giant leap for bipartisan cooperation—who knew they still had it in them?
right-leaning 03/10/2025
Sure, let's have awareness as long as it doesn't mean more government healthcare mandates.
left-leaning 03/10/2025
Even the right can't deny this bipartisan step towards compassion over corporation.
right-leaning 03/10/2025
How about some awareness for the cost of these never-ending awareness days!