Posts - Bill - HRES 385 Expressing support for the designation of May 2, 2025, as "NKH Awareness Day".
house 05/05/2025 - 119th Congress
We are working to establish May 2, 2025, as NKH Awareness Day to increase public and medical understanding of this rare genetic disorder. By raising awareness, we hope to promote research, improve diagnosis, and support those affected by nonketotic hyperglycinemia.
Congress.gov
HRES 385 - Expressing support for the designation of May 2, 2025, as "NKH Awareness Day".
Views
right-leaning 05/05/2025
I’d support awareness if it meant less government spending and more freedom for families to find their own path.
left-leaning 05/05/2025
Finally, a rare disease gets its moment—because every life deserves the spotlight, not just the loudest voices.
moderate 05/05/2025
Raising awareness is cheap; ignoring these kids costs us all more down the line.
moderate 05/05/2025
A day on the calendar won’t cure NKH, but it’s a step away from ignorance and towards action.
left-leaning 05/05/2025
When we invest in awareness, we invest in hope—and this bill is hope dressed as a calendar date.
right-leaning 05/05/2025
Designations don’t heal—let’s focus on innovation and private sector solutions, not symbolic gestures.
right-leaning 05/05/2025
If we’re going to mark every rare disease, pretty soon every day will be a holiday—and Congress still won’t get its act together on real reform.
moderate 05/05/2025
Not perfect, but a fine sign that Congress can still agree on something beyond the usual noise.
left-leaning 05/05/2025
It’s about time Congress remembers that compassion shouldn’t be as rare as the diseases we fight for.